Rare Disease Special
February 28, 2017
Learning and Thriving with a Rare Disease
During The Balancing Act’s Rare Disease special we explore two rare diseases, X-linked hypophosphatemia and neuroendocrine tumors, as well as catch up with one special patient who inspired our Behind the Mystery segments. X-linked hypophosphatemia is an inherited bone disorder causing bow-legs, pigeon-toes and excessive cavities due to low phosphorus levels. We hear how it effects the lives of two brothers living with this rare disease and the hope they have for the future. We also hear an inspiring women who didn’t stop to find the correct diagnoses for her Neuroendocrine tumors; as she shares hopeful words for anyone living with a rare disease. Finally we revisit with Ilana Jacqueline, Managing Editor of the The RARE Daily at Global Genes she gives us a health update as well as share the inspiration on her soon-to-be-released book, “Surviving and Thriving with Chronic Illness”.
Preheat the oven to 325 degrees. Line two large baking sheets with parchment paper or silicone liners. Combine the flour, baking soda, cornstarch and salt in a medium bowl. Stir and set aside.
Did you know that you can substitute 3/4 cup of olive oil for every cup of butter called in a recipe? Chef Stuart O’Keeffe bakes delicious sugar cookies with extra light olive oil from Star Fine Foods as a cholesterol-friendly substitute for butter. Loaded with healthy unsaturated fats, olive oil is touted as a heart […]
Almond flour is a surprisingly tasty — and healthy — alternative to regular flour. Healthy eating advocate Angie Worth joins the show to demonstrate how Nature’s Eats Blanched Almond Flour is a delicious, gluten-free substitute to traditional flour. Your mouth will water as Angie shows a variety of holiday treats, from pumpkin pecan muffins to […]