Behind the Mystery: X-Linked Hypophosphatemia
February 28, 2017
Learning and Thriving with a Rare Disease
During The Balancing Act’s Rare Disease special we explore two rare diseases, X-linked hypophosphatemia and neuroendocrine tumors, as well as catch up with one special patient who inspired our Behind the Mystery segments. X-linked hypophosphatemia is an inherited bone disorder causing bow-legs, pigeon-toes and excessive cavities due to low phosphorus levels. We hear how it effects the lives of two brothers living with this rare disease and the hope they have for the future. We also hear an inspiring women who didn’t stop to find the correct diagnoses for her Neuroendocrine tumors; as she shares hopeful words for anyone living with a rare disease. Finally we revisit with Ilana Jacqueline, Managing Editor of the The RARE Daily at Global Genes she gives us a health update as well as share the inspiration on her soon-to-be-released book, “Surviving and Thriving with Chronic Illness”.
On today’s episode of The Balancing Act, get delicious drink and dessert ideas, and check out a reliable, affordable way to take a group road trip.
Carl’s Van Rentals has been the perfect choice for group travel since 1993, focusing on hard-to-find vehicles like 15-passenger Sprinter vans and minibuses.
Java Monster and Espresso Monster are hybrid coffee and energy products that are perfect for consumers who need that extra pick-me-up.