Behind the Mystery: X-Linked Hypophosphatemia
February 28, 2017
Learning and Thriving with a Rare Disease.
During The Balancing Act’s Rare Disease special, we explore two rare diseases: X-linked hypophosphatemia and neuroendocrine tumors, as well as catch up with one special patient who inspired our Behind the Mystery segments. X-linked hypophosphatemia is an inherited bone disorder causing bow-legs, pigeon-toes and excessive cavities due to low phosphorus levels. We hear how it effects the lives of two brothers living with this rare disease and the hope they have for the future. We also hear an inspiring women who didn’t stop to find the correct diagnoses for her Neuroendocrine tumors as she shares hopeful words for anyone living with a rare disease. Finally, we revisit with Ilana Jacqueline, Managing Editor of the The RARE Daily at Global Genes, she gives us a health update as well as shares the inspiration on her soon-to-be-released book, “Surviving and Thriving with Chronic Illness.”
On this episode of The Balancing Act, we’re discussing all things health and science with a side dish of QuickBytes. BioTE Medical is a leader in Precision and Preventive Medicine. They create patient-centric strategies that optimize hormones for women and men. Amazon Future Engineer is a comprehensive childhood-to-career program aimed at increasing access to computer […]
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BioTE Medical is a leader in Precision and Preventive Medicine. They create patient-centric strategies that optimize hormones for women and men.