Behind the Mystery: X-Linked Hypophosphatemia
February 28, 2017
Learning and Thriving with a Rare Disease.
During The Balancing Act’s Rare Disease special, we explore two rare diseases: X-linked hypophosphatemia and neuroendocrine tumors, as well as catch up with one special patient who inspired our Behind the Mystery segments. X-linked hypophosphatemia is an inherited bone disorder causing bow-legs, pigeon-toes and excessive cavities due to low phosphorus levels. We hear how it effects the lives of two brothers living with this rare disease and the hope they have for the future. We also hear an inspiring women who didn’t stop to find the correct diagnoses for her Neuroendocrine tumors as she shares hopeful words for anyone living with a rare disease. Finally, we revisit with Ilana Jacqueline, Managing Editor of the The RARE Daily at Global Genes, she gives us a health update as well as shares the inspiration on her soon-to-be-released book, “Surviving and Thriving with Chronic Illness.”
Ralph goes meatless! Watch as chef Ralph kicks off The Big Game with nutritious tailgating food using Lightlife Plant-Based Ground.
The Balancing Act kicks off 2020 with a football-themed extravaganza! Tailgate with Ralph on the Road, hear from football legend Michael Irvin, and more. First, Beth Troutman is on location at InnovAge in Denver, Colorado to learn more about their PACE program, which helps seniors live independently. Then, Ralph goes meatless! Watch as celebrity chef Ralph Pagano kicks off […]
Beth Troutman is on location at InnovAge in Denver, Colorado to learn more about their PACE program, which helps seniors live independently.