Behind the Mystery: X-Linked Hypophosphatemia
February 28, 2017
Learning and Thriving with a Rare Disease.
During The Balancing Act’s Rare Disease special, we explore two rare diseases: X-linked hypophosphatemia and neuroendocrine tumors, as well as catch up with one special patient who inspired our Behind the Mystery segments. X-linked hypophosphatemia is an inherited bone disorder causing bow-legs, pigeon-toes and excessive cavities due to low phosphorus levels. We hear how it effects the lives of two brothers living with this rare disease and the hope they have for the future. We also hear an inspiring women who didn’t stop to find the correct diagnoses for her Neuroendocrine tumors as she shares hopeful words for anyone living with a rare disease. Finally, we revisit with Ilana Jacqueline, Managing Editor of the The RARE Daily at Global Genes, she gives us a health update as well as shares the inspiration on her soon-to-be-released book, “Surviving and Thriving with Chronic Illness.”
Cats, the record-breaking musical spectacular by Andrew Lloyd Webber that has captivated audiences in over 30 countries and 15 languages, is now on tour across North America!
From Broadway to cooking and health, stay tuned for another jam-packed episode of The Balancing Act.
Last month, we sat down with Laura Kronen, who shared her experience with managing diabetes. She's back to give us an update on life with Eversense.