Airing weekdays at 7:30 A.M. on

Airing weekdays at 7:30 A.M. on

During The Balancing Act’s Rare Disease special, we explore two rare diseases: X-linked hypophosphatemia and neuroendocrine tumors, as well as catch up with one special patient who inspired our Behind the Mystery segments. X-linked hypophosphatemia is an inherited bone disorder causing bow-legs, pigeon-toes and excessive cavities due to low phosphorus levels. We hear how it effects the lives of two brothers living with this rare disease and the hope they have for the future. We also hear an inspiring women who didn’t stop to find the correct diagnoses for her Neuroendocrine tumors as she shares hopeful words for anyone living with a rare disease. Finally, we revisit with Ilana Jacqueline, Managing Editor of the The RARE Daily at Global Genes, she gives us a health update as well as shares the inspiration on her soon-to-be-released book, “Surviving and Thriving with Chronic Illness.”

Up next on The Balancing Act, why being your own advocate is key to managing your health. We'll hear from two patients who didn't let their diagnosis stop them from advocating for others. 

Painful diabetic peripheral neuropathy of the feet, or diabetic nerve pain of the feet, is a type of nerve damage that is a common complication of diabetes. Patients describe the pain in their feet as burning, an electrical shock, pins and needles, or stabbing and knife-like. There are three FDA-approved oral prescription treatments for diabetic […]

Myasthenia gravis (MG) means grave or serious muscle weakness, which is what patients experience with this rare, autoimmune disease. The hallmark symptom is muscle weakness that worsens after periods of activity and improves after periods of rest. University of South Florida (USF) Health Department of Neurology physician Dr. Niraja Suresh details the disease spectrum, how […]

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