Rare Disease Day Special 2017: Understanding Neuroendocrine Tumors
February 28, 2017
Struggling to get a diagnosis?
If you are struggling to get a diagnosis for chronic symptoms like diarrhea, flushing, abdominal pain, fatigue or wheezing, you may want to get tested for Neuroendocrine tumors (NETs). Symptoms vary widely between NET patients and may be confused with irritable bowel syndrome, rosacea, ulcers, Crohn’s disease, allergies or pneumonia. Blood work and urine tests are available, as well as CT, PET and other imaging techniques that can locate and identify NET lesions. There is a huge gap between the number of patients diagnosed with NETs and the number of people who are living with NETs, but are unaware that they have the disease.
On this episode, Beth Troutman tells her story; Christina Nicholson embarks on an adventure to Orlando with her family; and former football player Marc Bouniconti shares his journey.
Three decades later, Marc Buoniconti, a quadriplegic, visits The Balancing Act to talk about his life, his mission, and his goal to one day walk again.
The Balancing Act's host Christina Nicholson and her family are embarking on a fun-filled vacation to Orlando, Fla., also known as the "theme park capital of the world."