Behind the Mystery
A specialized, recurring segment devoted to rare and genetic diseases, Behind the Mystery highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. We clarify the often-complex issues by offering easy-to-understand explanations from top experts in the field. Our goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform.
The California Life Sciences Association estimates that 30 million people, or one in 10 Americans, are living with a rare disease. A disease is defined as rare when it affects less than 200,000 people. Among the cases in America, there are 7,000 known rare diseases affecting these people. One of these diseases is the incurable pulmonary hypertension, and more specifically pulmonary arterial hypertension. Behind the Mystery is giving you the inside scoop on this disease and why we should be more aware of its effects.
Behind the Mystery is on location at City of Hope in Duarte, California, to speak with Hematologist and Oncologist Dr. Alex Herrera to learn more about Hodgkin Lymphoma.
Behind the Mystery takes a closer look at one of the two types of Polycystic Kidney disease. Autosomal Dominant Polycystic Kidney Disease, or ADPKD, is a rare, genetic condition.
Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.
On the latest episode of Behind the Mystery, The Balancing Act is learning about two rare diseases: Autosomal Dominant Polycystic Kidney Disease andBlastic Plasmacytoid Dendritic Cell Neoplasm.
The Balancing Act welcomes back Ilana Jacqueline to discuss her brave journey as she continues battling a rare disease.
We're learning about Pompe disease, a rare neuromuscular disorder affecting the hips, thighs, and shoulders, as well as muscles in the lungs.
On this special edition of The Balancing Act on Rare Disease Day, we are taking a look at the lives of patients who suffer from lesser-known conditions.
Understanding Pheochromocytoma and Paraganglioma: rare neuroendocrine tumors that can dramatically impact survival in people of all ages.