Behind The Mystery
Behind the Mystery is a recurring series on The Balancing Act devoted to advocating for rare and genetic diseases. The series clarifies the often-complex issues by offering easy-to-understand explanations from top experts in the field through partnerships with foundations and pharmaceutical companies. We amplify the voices of patients, families, and advocates affected by rare diseases via our national television platform.
Behind The Mystery is a proud media partner of NORD (National Organization for Rare Disorders).
Read the announcement of our partnership here!
In the United States, diseases that affect less than 200,000 people are classified as “rare.” However, like anything else, when something is put in that category, it generally gets less attention and less awareness. There are over 7,000 rare diseases, and they affect 300-million people worldwide. Behind The Mystery is a segment on The Balancing […]
Behind the Mystery of Wilson Disease: A Rare, Inherited Disorder That Results in Copper Building Up in the Organs
Wilson disease is a rare, inherited disorder in which the body's ability for removing excess copper is diminished. Over time, this results in copper levels building up in the liver, brain, and other organs.
Executive Director of the Lennox-Gastaut Syndrome (LGS) Foundation Dr. Tracy Dixon-Salazar shares what the foundation is doing to help those with LGS.
Celebrating Rare Disease Day. Plus, a sit-down interview with Tracy Dixon-Salazar from the Lennox-Gastaut Syndrome Foundation & how the Scleroderma Research Foundation is honoring its founder in a big way.
In 1987, scleroderma patient Sharon Monsky founded the Scleroderma Research Foundation (SRF) with the purpose of finding a cure. Although she passed away from disease complications in 2002, her mission lives on today.
Taking a look at empowering moments from Behind the Mystery.
Refresh, renew, and rejuvenate! Stay tuned for an all-new Balancing Act, where we're featuring the latest in health, wellness, and more.
Complex Regional Pain Syndrome (CRPS) is a neuropathic disorder characterized by severe chronic pain, swelling, and hypersensitivity to touch.
The Foundation for Sickle Cell Disease Research (FSCDR) has created a center specifically made for sickle cell disease patients in which they cater to every need.