Behind the Mystery
A specialized, recurring segment devoted to rare and genetic diseases, Behind the Mystery highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. We clarify the often-complex issues by offering easy-to-understand explanations from top experts in the field. Our goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform.
On this new episode of The Balancing Act, we're talking golf tips and final expense insurance. Plus, another edition of Behind the Mystery.
Join us on a very special Behind the Mystery as we meet with physician, scientist, patient, and best-selling author, David Fajgenbaum to learn more about Castleman disease.
Don’t move! The Balancing Act is back with a new Behind the Mystery segment and an inside look at a Broadway sensation.
We're discussing Alport syndrome, a rare, genetic, and chronic kidney condition characterized by declining kidney function which can lead to end-stage kidney disease.
Watch Ilana Jacqueline's inspiring journey and learn how it took 19 years for her to get diagnosed with Primary Immune Deficiency Disease.
At a very young age, Mylah was diagnosed with Kawasaki disease, which causes inflammation in blood vessels throughout the body.
Behind the Mystery co-creators Molly Mager and Carri Levy talk about what prompted them to start the series. Molly’s twin brother was diagnosed with acinar cell cystadenoma at the age of 25, while Carri’s daughter Ilana Jacqueline suffered for years before being diagnosed with Primary Immune Deficiency Disease. We are excited to celebrate #RareDiseaseDay this […]
Did you know that one in 10 Americans is living with a rare disease? That means rare diseases affect up to 30 million people in the U.S. Many of those who suffer from a rare disease have a hard time getting a proper diagnosis—some people can go decades without being diagnosed correctly. We are excited […]
Seth Rotberg, Co-Founder of Our Odyssey, speaks about the importance of connecting young adults impacted by a rare or chronic condition.