Behind the Mystery
A specialized, recurring segment devoted to rare and genetic diseases, Behind the Mystery highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. We clarify the often-complex issues by offering easy-to-understand explanations from top experts in the field. Our goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform.
Don’t move! The Balancing Act is back with a new Behind the Mystery segment and an inside look at a Broadway sensation.
We're discussing Alport syndrome, a rare, genetic, and chronic kidney condition characterized by declining kidney function which can lead to end-stage kidney disease.
Watch Ilana Jacqueline's inspiring journey and learn how it took 19 years for her to get diagnosed with Primary Immune Deficiency Disease.
At a very young age, Mylah was diagnosed with Kawasaki disease, which causes inflammation in blood vessels throughout the body.
Behind the Mystery co-creators Molly Mager and Carri Levy talk about what prompted them to start the series. Molly’s twin brother was diagnosed with acinar cell cystadenoma at the age of 25, while Carri’s daughter Ilana Jacqueline suffered for years before being diagnosed with Primary Immune Deficiency Disease. We are excited to celebrate #RareDiseaseDay this […]
Did you know that one in 10 Americans is living with a rare disease? That means rare diseases affect up to 30 million people in the U.S. Many of those who suffer from a rare disease have a hard time getting a proper diagnosis—some people can go decades without being diagnosed correctly. We are excited […]
Seth Rotberg, Co-Founder of Our Odyssey, speaks about the importance of connecting young adults impacted by a rare or chronic condition.
We are excited to celebrate #RareDiseaseDay this February 29th, 2020. For this, we’ll be sharing our favorite patient stories to help raise awareness and give a voice to those who need one. Join us on this day as we recognize patients like little Mylah, who suffers from Kawasaki Disease. A specialized, recurring segment on The Balancing […]
The California Life Sciences Association estimates that 30 million people, or one in 10 Americans, are living with a rare disease. A disease is defined as rare when it affects less than 200,000 people. Among the cases in America, there are 7,000 known rare diseases affecting these people. One of these diseases is the incurable pulmonary hypertension, and more specifically pulmonary arterial hypertension. Behind the Mystery is giving you the inside scoop on this disease and why we should be more aware of its effects.