Behind the Mystery
A specialized, recurring segment devoted to rare and genetic diseases, Behind the Mystery highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. We clarify the often-complex issues by offering easy-to-understand explanations from top experts in the field. Our goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform.
Arginase 1 Deficiency is an inherited, metabolic disease that is both debilitating and progressive, leading to significant morbidity and early mortality.
On this episode of The Balancing Act, stay tuned for a new edition of Behind the Mystery.
ENPP1 deficiency is a devastating, life-long disease, making a rapid and correct diagnosis critical.
The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act.
Travis Flores is a 29-year-old cystic fibrosis survivor and a recipient of a very rare third double-lung transplant in May 2020.
The Balancing Act has partnered with the National Organization for Rare Disorders (NORD) and WEGO Health to shine a light on rare diseases and the impact they have on patients.
William Yank is a 23-year-old, three-time Leukemia survivor, who now serves as a WEGO Health Patient Leader and a Leukemia and Lymphoma Society Ambassador.
Kelly Barendt is a blogger and YouTuber with over 300,000 TikTok followers who shares her journey with Friedreich's Ataxia to help others feel less alone.
The challenge with IgA nephropathy is that most patients don't actually know they have the disease, and most are diagnosed by chance.