Behind the Mystery
A specialized, recurring segment devoted to rare and genetic diseases, Behind the Mystery highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. We clarify the often-complex issues by offering easy-to-understand explanations from top experts in the field, the National Institutes of Health (NIH) and those diagnosed with rare diseases. Behind the Mystery works with organizations like Global Genes and the National Organization for Rare Disorders (NORD) to expand awareness, educate the public and provide the viewer with early diagnosis and treatment options.
The Balancing Act welcomes back Ilana Jacqueline to discuss her brave journey as she continues battling a rare disease.
We're learning about Pompe disease, a rare neuromuscular disorder affecting the hips, thighs, and shoulders, as well as muscles in the lungs.
On this special edition of The Balancing Act on Rare Disease Day, we are taking a look at the lives of patients who suffer from lesser-known conditions.
Understanding Pheochromocytoma and Paraganglioma: rare neuroendocrine tumors that can dramatically impact survival in people of all ages.
Narcolepsy is a condition that affects approximately 1 in 2,000 people in the U.S. and is often underdiagnosed and misdiagnosed.
On Behind the Mystery, we're investigating Polycythemia Vera (PV), a rare blood cancer which causes overproduction of red blood cells.
Neurogenic orthostatic hypotension (nOH) is a rare, autonomic nervous system disorder characterized by low blood pressure that occurs upon standing.
Plasminogen Deficiency (PLGD) is an ultra-rare genetic disease that can have devastating effects on multiple organ systems throughout the body.
This episode of The Balancing Act focuses on two very different diseases: Lupus and Plasminogen Deficiency (PLGD).