Airing weekdays at 7:30 A.M. on

Airing weekdays at 7:30 A.M. on

XLH is often perceived as a child’s disease, but this rare debilitating bone disease is a genetic disease that continues to progress with age. We’ll meet a family that has been diagnosed with X-linked Hypophosphatemia and is now living with the reality of the disease.

We’ll also hear from Dr. Jan De Beur, an endocrinologist from Johns Hopkins Hospital in Baltimore, who will explain cause, diagnosis and resources available to find out more about XLH. It’s part of the Mystery Behind the Rare Disease series on the Balancing Act.

Clinical trials are an opportunity for patients to receive promising new therapies, but they can be difficult to navigate. Learn how The Leukemia & Lymphoma Society’s Clinical Trial Support Center is helping guide patients.

There are approximately 7,000 known rare diseases, but only 5% of them have an approved treatment. Learn how early intervention, proper management strategies, and clinical trials are key for rare disease patients. 

Friedreich’s Ataxia is a progressive and debilitating neurological disorder. It's important to recognize symptoms and obtain an early diagnosis to properly manage the condition.

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