Surviving and Thriving with Chronic Illness
February 28, 2017
A personal Journey with chronic illness.
There are about seven thousand rare genetic diseases that affect more than 30 million Americans… and millions more worldwide. Time is against them. It often takes more than seven years to reach a proper diagnosis. And an astounding 95-percent of rare diseases have no FDA-approved treatment. The Balancing Act’s Behind the Mystery Series has highlighted many of them… and it all started with one very personal story. Ilana Jacqueline joins Olga Villaverde as we learn more about her courageous battle with a chronic disease. Not only is she living… she’s thriving…but the battle has not been easy.
Behind the Mystery is a special segment dedicated to revolutionizing the way the health care system works for those suffering from a rare and genetic disorder.
Behind the Mystery takes a closer look at one of the two types of Polycystic Kidney disease. Autosomal Dominant Polycystic Kidney Disease, or ADPKD, is a rare, genetic condition.
Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.