Ilana Shares Her Rare Disease Story | Behind the Mystery

Watch Ilana Jacqueline’s inspiring journey and learn how it took 19 years for her to get diagnosed with Primary Immune Deficiency Disease—and how this led her to become a #RareDisease patient advocate!

Ilana explains how having a rare disease affects her on a day-to-day basis and how she has been able to lead a relatively normal life. How has your journey inspired you? Let us know in the comments. You are NOT alone! 

We are excited to celebrate #RareDiseaseDay this February 29th, 2020. For this, we’ll be sharing our favorite patient stories to help raise awareness and give a voice to those who need one. Join us on this day! A specialized, recurring segment on The Balancing Act, Behind the Mystery is devoted to rare and genetic diseases. It highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. Its goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform airing on Lifetime.