Hear Mylah’s Story for Rare Disease Day | Behind the Mystery
February 29, 2020
As a parent, it’s normal to struggle when you learn that your child has a #raredisease. Little Mylah was diagnosed with Kawasaki disease at a very young age, but has persevered. Kawasaki disease is an illness that causes inflammation in blood vessels throughout the body. A lasting fever usually is the first sign followed by enlarged lymph nodes. It is a condition that often affects kids younger than 5 years old. Kawasaki affects fewer than 20,000 people per year. Today, Mylah is thriving and she’s a normal 5-year-old.
A specialized, recurring segment on The Balancing Act, Behind the Mystery is devoted to rare and genetic diseases. It highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. Its goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform airing on Lifetime.
Knowing the risk of being an OTC carrier and how to prepare for it with the UCD Genetic Testing Program, sponsored by Horizon Therapeutics and performed by Invitae.
Acromegaly is a slow-progressing disorder that occurs when the pituitary gland produces too much growth hormone.
Up next, stay tuned for a brand-new Behind the Mystery special — only on The Balancing Act.