Behind the Mystery of X-linked Hypophosphatemia (XLH): A Hereditary, Progressive, Lifelong Disease
February 19, 2024
Ashley was diagnosed with X-linked hypophosphatemia (XLH) when she was 6 months old and while she felt like any other kid, this condition impacted her ability to walk freely while growing up. We will explore the challenges she faced managing her disease, and how her daughter’s diagnosis led her to advocate for others.
There are many misconceptions about XLH that need to be addressed to better manage the condition. We met with Dr. Leanne Ward, an expert in pediatric bone disorders, who explained the intricacies of the condition. Cory Davidson, a physician’s assistant who manages XLH patients on a day-to-day basis, shared with us the importance of education and partnership between a physician and their patients.
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You may recognize Dr. Tracy Dixon Salazar, Executive Director of LGS Foundation from her feature on the TODAY show, but her story was first shared on our television and social platform, Behind the Mystery. Within these episodes, Tracy shares her daughter Savannah’s Lennox-Gastaut Syndrome journey, and how she advocates for those living with LGS. She […]
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