The Balancing Act Explores Rare Diseases
February 28, 2019
Opening Up About Rare Diseases
On this special edition of The Balancing Act on Rare Disease Day, we are taking a look at the lives of patients who suffer from lesser-known conditions. In fact, approximately one in 10 Americans battle a rare disease. In the U.S., a disease is considered rare if it affects fewer than 200,000 people. If you’re struggling, know you are not alone.
First up, understanding Pheochromocytoma and Paraganglioma: rare neuroendocrine tumors that can dramatically impact survival in people of all ages.
Next, we’re learning about Pompe disease, a rare neuromuscular disorder affecting the hips, thighs, and shoulders, as well as muscles in the lungs. Sarah Gonzalez, head of medical diagnostics at Sanofi Genzyme, discusses how genetic testing plays an important role in obtaining a diagnosis.
Then, The Balancing Act welcomes back Ilana Jacqueline to discuss her brave journey as she continues battling a rare disease. Not only is she living, she’s thriving–but the fight has not been easy.
Cats, the record-breaking musical spectacular by Andrew Lloyd Webber that has captivated audiences in over 30 countries and 15 languages, is now on tour across North America!
From Broadway to cooking and health, stay tuned for another jam-packed episode of The Balancing Act.
Last month, we sat down with Laura Kronen, who shared her experience with managing diabetes. She's back to give us an update on life with Eversense.