Behind the Mystery Special: A Look at Two Rare Diseases
September 3, 2019
Everything You Need to Know
On the latest episode of Behind the Mystery, The Balancing Act is learning about two rare diseases: Autosomal Dominant Polycystic Kidney Disease and Blastic Plasmacytoid Dendritic Cell Neoplasm.
First, Behind the Mystery takes a closer look at Autosomal Dominant Polycystic Kidney Disease, or ADPKD, a rare, genetic condition. The Balancing Act travels to Yale School of Medicine to learn about diagnosis and management of ADPKD from Dr. Neera Dahl.
Then, Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.
The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act.
Travis Flores is a 29-year-old cystic fibrosis survivor and a recipient of a very rare third double-lung transplant in May 2020.
The Balancing Act has partnered with the National Organization for Rare Disorders (NORD) and WEGO Health to shine a light on rare diseases and the impact they have on patients.