Behind The Mystery

You may recognize Dr. Tracy Dixon Salazar, Executive Director of LGS Foundation from her feature on the TODAY show, but her story was first shared on our television and social platform, Behind the Mystery. Within these episodes, Tracy shares her daughter Savannah’s Lennox-Gastaut Syndrome journey, and how she advocates for those living with LGS. She […]

Behind the Mystery of mesothelioma, a rare lung cancer and resources available. Plus, choosing the best school for educational development for children with autism.

A diagnosis of mesothelioma can be devastating and overwhelming. We’ll hear from Kim, who is living with the disease but not letting it stop her.

A special edition of The Balancing Act. How The Guthy-Jackson Charitable Foundation is supporting research to benefit not only those with NMO but potentially expand the understanding of other autoimmune diseases.

Discover hope, support, and understanding within the pages of the Behind the Mystery’s Navigating Your Rare Disease Guide. Let this beginners guide be your start, offering support, inspiration, and a sense of community as you navigate the unique challenges of discovering you have a rare disease.

X-linked hypophosphatemia (XLH) is a hereditary, progressive, and lifelong rare disease that affects the bones, muscles, and teeth of both children and adults.

APDS is caused by a genetic mutation in the PIK3CD or PIK3R1 gene that leads to high activity levels on the P13K delta protein, which leads to a weakened immune system and autoimmune disease.

Up next on The Balancing Act, we're going Behind the Mystery of APDS. Plus, how to fit the perfect-fitting bra and how to prepare a filet mignon like a professional chef!

Gaucher disease can cause a variety of symptoms, from an enlarged liver and spleen to skeletal problems, blood disorders, neurological complications, respiratory problems, and more. It can also have emotional implications.