Behind the Mystery of Wilson Disease: A Rare, Inherited Disorder That Results in Copper Building Up in the Organs
March 6, 2023
Wilson disease is a rare, inherited disorder in which the body’s ability for removing excess copper is diminished. Over time, this results in copper levels building up in the liver, brain, and other organs, leading to damage that can greatly impact a patient’s life.
Ginta, a Wilson disease patient, discusses her journey with the disease and how she is managing her condition today. We also met with hepatologist Dr John M. Vierling and neurologist Dr Danny Bega who discuss the signs and symptoms to obtain a diagnosis and the importance of adhering to your physician’s management plan.
We also have an exclusive in-studio interview with Alexion Pharmaceuticals’ Patient Experience and Insights VP, Wendy Erler and Wilson Disease Associate Board Member, Rhonda Rowland to hear about the importance of industry and advocacy coming together to support the rare disease community.
Dr Bega and Dr Vierling are paid consultants of Alexion Pharmaceuticals, Inc.
Special thanks to Alexion Pharmaceuticals, Inc. for its sponsorship of this program.
To learn more, visit:
WilsonDisease.org
LiverFoundation.org
RareDiseases.org
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