Receiving a rare disease diagnosis can be isolating, but connecting with others on shared experiences can provide valuable support and understanding.
Want to explore our complete guide on navigating life with a rare disease? Click here.
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Receiving a rare disease diagnosis can be isolating, but connecting with others on shared experiences can provide valuable support and understanding.
Want to explore our complete guide on navigating life with a rare disease? Click here.
Join host Jennifer Bertrand as she redesigns a well-used space for the children and staff at Shriners Children’s with the help of a very special girl.
MCT8 deficiency effects a child’s brain development, ability to gain weight, muscle strength, and the heart. It can also impact sleep and shorten life expectancy.
Wendy Erler, Vice President of Patient Experience at Alexion, AstraZeneca, returns to The Balancing Act to discuss Alexion’s commitment to advancing early and accurate diagnoses