Behind the Mystery: Epidermolysis Bullosa (EB)
October 25, 2021
Children with EB are often called “butterfly children” because the fragility of their skin is likened to wings of a butterfly.
The EB Research Partnership is the largest global organization dedicated to funding research to treat and cure Epidermolysis Bullosa or EB. Their goal? To cure EB by 2030 with the Venture Into Cures methodology, which is changing the model for rare disease research funding.
We’re joined by Michael Hund, CEO of the EB Research Partnership, and Alexander Gambon, Chief Brand Officer at Elongate, who together are bridging the gap between cryptocurrency and charity. We’ll also sit down with Chris and Eileen Attar, whose 5-year-old son Brady has EB, to see how this disease affects their family and how they are determined to have their son live a full life, despite his rare disease.
Black Friday technically isn’t a holiday, but some would say it is their favorite! The one-day-a-year stores nationwide offer deals on big-ticket items like iPhones, TVs, Clothes, Jewelry, Toys, and much more. If you’re planning on going shopping and haven’t found any good deals yet, don’t panic! We’ve got you covered. Here are a few […]
Star Wars fans had a once-in-a-lifetime opportunity to get their hands on cinema history. Anthony Daniels who portrayed the iconic Star Wars droid C-3PO, sold his personal memorabilia collection. He nearly auctioned off 200 items ranging from props, costumes, and scripts. The big piece of the collection was the head of the beloved character C-3PO. […]
Are you looking to attend a music festival in South Florida? With great weather year-round, it’s a never-ending party atmosphere and it comes with many music festivals geared toward every style of music. You can dance the night away in Miami, the Keys, Fort Lauderdale, or West Palm Beach this year. If this is right […]