Behind the Mystery: Castleman Disease
July 15, 2020
Management of Castleman Disease
Castleman disease is sometimes referred to as a mix between an autoimmune disease, an infectious disease, and a cancer with symptoms that mimic many other disorders.
Because Castleman disease is rare, healthcare professionals often correctly and rightfully suspect other diseases first.
Diagnosis of exclusion is a slow and arduous process for patients and doctors alike. Approximately 6,500 to 8,700 new cases of Castleman disease are diagnosed every year. The subtype iMCD has up to 957 new cases per year.
Join us on a very special Behind the Mystery as we meet Frank, who takes us on his journey as a Castleman disease patient from facing his own mortality and finding hope. Also, stay tuned to learn more about Castleman disease from scientist, patient, and best-selling author of Chasing My Cure, Dr. David Fajgenbaum.
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iMCD is the deadliest subtype of Castleman disease. Approximately one third of patients die within five years of diagnosis, and another third die within 10 years if not treated.
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