World Orphan Drug Congress
July 11, 2014
Bringing hope to millions of people who suffer from rare diseases.
The fifth annual World Orphan Drug Congress will be held in Washington DC. An event dedicated to fostering partnerships and collaboration. An event bringing hope to millions of people who suffer from rare diseases. Innovators coming together to help find new treatments…to help discover cures – and to bring MORE awareness here and around the world. The Balancing Act’s CEO Tom Deters will be present to discuss the importance of awareness here and around the world.
Behind the Mystery is a special segment dedicated to revolutionizing the way the health care system works for those suffering from a rare and genetic disorder.
Behind the Mystery takes a closer look at one of the two types of Polycystic Kidney disease. Autosomal Dominant Polycystic Kidney Disease, or ADPKD, is a rare, genetic condition.
Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.