The Global Genes Project
December 10, 2012
Hope... It's in our Genes.
Joining The Balancing Act is Nicole Boice, founder of the Global Genes Project, a rare and genetic disease patient advocacy group, here to talk about how millions of Americans—one in ten—fall through the cracks of medical treatment because there is so little awareness or research funding the treatment of their conditions. There are seven thousand diseases with no treatment or cures, and awareness is needed to build a voice for those suffering from rare diseases and disorders with little to no support.
Behind the Mystery is a special segment dedicated to revolutionizing the way the health care system works for those suffering from a rare and genetic disorder.
Behind the Mystery takes a closer look at one of the two types of Polycystic Kidney disease. Autosomal Dominant Polycystic Kidney Disease, or ADPKD, is a rare, genetic condition.
Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.