Rare at Heart, What Makes Us Tick: NORD®

The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act. They are inviting all to join in shining a light on the challenges faced by rare patients and families, as well as those still without a diagnosis, and the need for research into treatments and cures. NORD’s Lisa Sarfaty sat down with us to present facts on rare diseases and how to get involved with the awareness day.

The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases in the United States. NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. Since then, the organization has led the way in voicing the needs of the rare disease community, driving supportive policies, furthering education, advancing medical research, and providing patient and family services for those who need them most.