Primary Periodic Paralysis Awareness
September 25, 2017
Top Symptoms and Triggers for Primary Periodic Paralysis.
Primary periodic paralysis (PPP) is a rare condition that causes attacks affecting your muscles and resulting in extreme muscle weakness or temporary paralysis, most often with an inability to stand independently, or even sit up. Primary periodic paralysis is not just one condition, but a group of inherited neuromuscular disorders. Although this condition is very rare, it affects about 5,000 to 6,000 individuals in the US or about three in every 200,000 people.
The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act.
Travis Flores is a 29-year-old cystic fibrosis survivor and a recipient of a very rare third double-lung transplant in May 2020.
The Balancing Act has partnered with the National Organization for Rare Disorders (NORD) and WEGO Health to shine a light on rare diseases and the impact they have on patients.