Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure
February 20, 2023
LGS is tough. So are we.
Lennox-Gastaut Syndrome is a severe epilepsy syndrome that develops in children and leads to lifelong disability. No one is born with it; instead, it evolves over time, starting with uncontrolled seizures. While there is no cure, there is a hopeful path forward. The Lennox-Gastaut Syndrome (LGS) Foundation is a nonprofit organization dedicated to improving the lives of individuals impacted by LGS through advancing research, awareness, education, and family support.
Executive Director of the LGS Foundation Dr. Tracy Dixon-Salazar sits down with us to discuss their “Finding the Cures Together” program to support patient families navigating their LGS journey. She emphasizes the importance of patient-led research: treatments designed with family, caregiver, and patient input.
The LGS Foundation is building a Collaborative Research Network, where scientists from all over the world can come together to discuss how they will find cures, and families can come together to discuss what a cure looks likes to them.
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