Airing weekdays at 7:30 A.M. on

Airing weekdays at 7:30 A.M. on

Synageva believes every second counts when developing life-changing orphan treatments. Our current lead program focuses on enzyme replacement therapy for Lysomal Acid Lipase Deficiency or LAL. Tune-in to Lifetime Television’s The Balancing Act as this popular cable television show is joined by noted metabolic geneticist and physician, Doctor Olaf Bodamer from The University of Miami. This lively, informative segment explores and examines what’s being done for this debilitating disease – a condition which affects the liver and attack all age groups including newborn infants. This close-up and personal features two women – a mother whose daughter fought the disease and lost her battle, and a young woman currently battling LAL.

Clinical trials are an opportunity for patients to receive promising new therapies, but they can be difficult to navigate. Learn how The Leukemia & Lymphoma Society’s Clinical Trial Support Center is helping guide patients.

There are approximately 7,000 known rare diseases, but only 5% of them have an approved treatment. Learn how early intervention, proper management strategies, and clinical trials are key for rare disease patients. 

Friedreich’s Ataxia is a progressive and debilitating neurological disorder. It's important to recognize symptoms and obtain an early diagnosis to properly manage the condition.