Idiopathic Pulmonary Fibrosis
September 5, 2013
Behind the Mystery Rare & Genetic Diseases
It’s commonly referred to as IPF. But Idiopathic Pulmonary Fibrosis is a disease with real world consequences – far beyond the seemingly benign three letter acronym. IPF is a disease many people refer to as ‘the deadliest disease no one has ever heard of’, yet this serious health condition could lead to more deaths than ovarian cancer, lymphoma, leukemia, and kidney cancer. Join Dr. Bill Bradford, Senior Fellow at InterMune as he discusses what the medical community is doing to bring hope to those dealing with, managing of, and suffering from, IPF. And Bob William shares his personal story.
Clinical trials are an opportunity for patients to receive promising new therapies, but they can be difficult to navigate. Learn how The Leukemia & Lymphoma Society’s Clinical Trial Support Center is helping guide patients.
There are approximately 7,000 known rare diseases, but only 5% of them have an approved treatment. Learn how early intervention, proper management strategies, and clinical trials are key for rare disease patients.
Friedreich’s Ataxia is a progressive and debilitating neurological disorder. It's important to recognize symptoms and obtain an early diagnosis to properly manage the condition.