Hunter Syndrome Awareness
February 29, 2016
Raising Awareness for Hunter Syndrome
Finding an underlying cause to your child’s long list of childhood illnesses and repeat visits to your pediatrician can be tough. But it’ll also be a huge relief when you’re able to pin-point the problem. Seven-year-old Jackson has Hunter syndrome — a serious genetic disorder that primarily affects males. Hunter syndrome is difficult to diagnose because some of the symptoms like ear infections and hernias can be common in children. It’s important to see a doctor who can help recognize the particular combination of symptoms seen in this rare disease. The more awareness that exists for Hunter syndrome, the more likely that patients and their families can reach a diagnosis sooner with the help of their doctor. That’s coming up on The Balancing Act.
Behind the Mystery is a special segment dedicated to revolutionizing the way the health care system works for those suffering from a rare and genetic disorder.
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Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.