Hear Seth’s Story for Rare Disease Day | Behind the Mystery
February 29, 2020
Seth Rotberg, Co-Founder of Our Odyssey, speaks about the importance of connecting young adults impacted by a rare or chronic condition. Seth started Our Odyssey because of his experience watching his mother struggle with Huntington’s disease, which took five to seven years to be diagnosed. When Seth went for testing, he discovered that he is guaranteed to get Huntington’s disease barring a cure or an effective treatment.
A specialized, recurring segment on The Balancing Act, Behind the Mystery is devoted to rare and genetic diseases. It highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. Its goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform airing on Lifetime. https://thebalancingact.com/category/behind-the-mystery/ www.linkedin.com/company/behind-the-mystery
PROMOTED
Bringing the best tips from the experts in Atlanta in business, beauty, wealth management, child healthcare, car shopping, and more. Each year, Atlanta’s Women’s Entrepreneurship Initiative selects 15 local female entrepreneurs for a 15-month business training program. We meet women who have grown their companies, created jobs, and broke through the glass ceiling. With some […]
PROMOTED
iMCD is the deadliest subtype of Castleman disease. Approximately one third of patients die within five years of diagnosis, and another third die within 10 years if not treated.
PROMOTED
There are no effective treatment options for people with unresectable or metastatic chondrosarcoma despite many attempts by multiple pharmaceutical companies over the past few decades.
Comments