Hear Seth’s Story for Rare Disease Day | Behind the Mystery
February 29, 2020
Seth Rotberg, Co-Founder of Our Odyssey, speaks about the importance of connecting young adults impacted by a rare or chronic condition. Seth started Our Odyssey because of his experience watching his mother struggle with Huntington’s disease, which took five to seven years to be diagnosed. When Seth went for testing, he discovered that he is guaranteed to get Huntington’s disease barring a cure or an effective treatment.
A specialized, recurring segment on The Balancing Act, Behind the Mystery is devoted to rare and genetic diseases. It highlights the emotional, scientific, and medical aspects associated with rare and genetic diseases. Its goal is to expand awareness for rare and genetic diseases through partnerships with pharmaceutical and biotech companies, while giving voices to the patients, families, and advocates affected via our national television platform airing on Lifetime. https://thebalancingact.com/category/behind-the-mystery/ www.linkedin.com/company/behind-the-mystery
Knowing the risk of being an OTC carrier and how to prepare for it with the UCD Genetic Testing Program, sponsored by Horizon Therapeutics and performed by Invitae.
Acromegaly is a slow-progressing disorder that occurs when the pituitary gland produces too much growth hormone.
Up next, stay tuned for a brand-new Behind the Mystery special — only on The Balancing Act.