Global Genes Celebrates World Rare Disease Day
February 21, 2014
Global Genes Project
30 million people in the United States are living with rare diseases…many of them children…and they can go undiagnosed for years. Advances in human genome mapping is helping families get treatment faster, and Global Genes is an organization that connects families who are trying to cope. Join President and Founder Nicole Boice and Patient Ilana Jacqueline as they share their stories of hope and support.
Walkasins® is a newly available external lower limb sensory prosthesis designed to replace lost nerve function in patients with peripheral neuropathy.
The EB Research Partnership is the largest global organization dedicated to funding research to treat and cure Epidermolysis Bullosa or EB.
Laithwaites is a wine subscription that exclusively selects a range of small-batch, handcrafted wines from top-quality family estates and passionate winemakers from every corner of the world.