Global Genes Celebrates World Rare Disease Day
February 21, 2014
Global Genes Project
30 million people in the United States are living with rare diseases…many of them children…and they can go undiagnosed for years. Advances in human genome mapping is helping families get treatment faster, and Global Genes is an organization that connects families who are trying to cope. Join President and Founder Nicole Boice and Patient Ilana Jacqueline as they share their stories of hope and support.
On this episode, Beth Troutman tells her story; Christina Nicholson embarks on an adventure to Orlando with her family; and former football player Marc Bouniconti shares his journey.
Three decades later, Marc Buoniconti, a quadriplegic, visits The Balancing Act to talk about his life, his mission, and his goal to one day walk again.
The Balancing Act's host Christina Nicholson and her family are embarking on a fun-filled vacation to Orlando, Fla., also known as the "theme park capital of the world."