Global Genes Hosts Annual RARE Tribute to Champions of Hope Gala
February 29, 2016
The Hollywood Spotlight Shines On Rare Disease Awareness
Each year, Global Genes hosts its annual RARE Tribute to Champions of Hope Gala, where we have the good fortune of hearing from rare disease champions from around the globe who are proving that great things can be accomplished by dreaming, planning, taking action, and believing.
The results are quite inspiring.
The purpose of the RARE Tribute to Champions of Hope Gala is to recognize those who are uniquely attacking the challenges they face in the fight against rare disease; those who are thinking outside of the box and working tirelessly, not focusing on what was, but setting their sites on what can/will be.
2015 Tribute to Champions of Hope Recap
The 4th annual RARE Tribute to Champions of Hope was host to over 800 attendees and was in part responsible for helping in raising 1.2 million dollars towards Global Genes’ educational programs and new Rare Patient Impact Grant Program. The night will be remembered for its courageous honorees, touching acceptance speeches, and amazing performances.
For more information, please go to https://globalgenes.org/2015tribute/
Behind the Mystery is a special segment dedicated to revolutionizing the way the health care system works for those suffering from a rare and genetic disorder.
Behind the Mystery takes a closer look at one of the two types of Polycystic Kidney disease. Autosomal Dominant Polycystic Kidney Disease, or ADPKD, is a rare, genetic condition.
Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.