From TikTok to TV: Online rare disease advocates set to appear on Lifetime morning show
February 22, 2022
At age 18, after years of experiencing physical challenges relating to poor balance and what she described as “clumsiness,” Kelly Barendt was diagnosed with Friedreich’s ataxia (FA). A rare genetic disease that impacts walking and speech, FA afflicts one in 50,000 Americans, with symptoms usually appearing between the ages of 5 and 18.
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