Cooley’s Anemia Foundation
June 16, 2014
Thalassemia – a lifetime of transfusions. Most thalassemia trait carriers don’t know it. Join the fight against thalassemia.
Cooley’s anemia, or thalassemia, is a genetic blood disorder that can be fatal if not treated early.
Originally thought to affect mostly people of Mediterranean heritage, people from many other backgrounds carry the trait. So how can we find out if we carry the trait?
Amy Celento of the Cooley’s Anemia Foundation joins us and details how doctors can review results of regular and routine blood tests to see if you are a carrier. It’s important medical information you don’t want to miss.
Behind the Mystery is a special segment dedicated to revolutionizing the way the health care system works for those suffering from a rare and genetic disorder.
Behind the Mystery takes a closer look at one of the two types of Polycystic Kidney disease. Autosomal Dominant Polycystic Kidney Disease, or ADPKD, is a rare, genetic condition.
Behind the Mystery takes a closer look at Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare disease that is often misdiagnosed and affects at least 500 to 1,000 patients each year in the U.S.