Celebrating Rare Disease Day 2023
February 20, 2023
Two foundations are advocating for cures for two devastating diseases
Today, we’re sharing the stories of two foundations that are advocating for cures for two devastating diseases. We have the executive director of the Lennox-Gastaut Syndrome (LGS) Foundation, Dr. Tracy Dixon-Salazar, who shares what they are doing to help those with LGS.
We’re also taking a look at the Scleroderma Research Foundation, which is fulfilling its goal to improve therapies and, ultimately, find a cure for the disease.
Plus, we’re celebrating Rare Disease Day 2023 as we bring awareness to the nearly 300 million people worldwide living with a rare disease. We’re sharing the impact rare stories have had on those working behind the scenes on Behind the Mystery, from co-creator Carri Levy, marketing manager Claire McCabe, and senior writer and producer Brittany Cocilova.
We’ve got many more rare stories to share this year. For a full list of rare diseases, we’ve covered visit thebalancingact.com.
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