Celebrating Rare Disease Day 2023

Today, we’re sharing the stories of two foundations that are advocating for cures for two devastating diseases. We have the executive director of the Lennox-Gastaut Syndrome (LGS) Foundation, Dr. Tracy Dixon-Salazar, who shares what they are doing to help those with LGS.

We’re also taking a look at the Scleroderma Research Foundation, which is fulfilling its goal to improve therapies and, ultimately, find a cure for the disease.

Plus, we’re celebrating Rare Disease Day 2023 as we bring awareness to the nearly 300 million people worldwide living with a rare disease. We’re sharing the impact rare stories have had on those working behind the scenes on Behind the Mystery, from co-creator Carri Levy, marketing manager Claire McCabe, and senior writer and producer Brittany Cocilova.

We’ve got many more rare stories to share this year. For a full list of rare diseases, we’ve covered visit thebalancingact.com.