Global Genes

Surviving and Thriving with Chronic Illness

There are about seven thousand rare genetic diseases that affect more than 30 million Americans… and millions more worldwide. Time is against them. It often takes more than seven years to reach a proper diagnosis. And an astounding 95-percent of rare diseases have no FDA-approved treatment. The Balancing Act’s Behind the Mystery Series has highlighted many of them… and it...

Behind The Mystery

Global Genes Hosts Annual RARE Tribute to Champions of Hope Gala

Each year, Global Genes hosts its annual RARE Tribute to Champions of Hope Gala, where we have the good fortune of hearing from rare disease champions from around the globe who are proving that great things can be accomplished by dreaming, planning, taking action, and believing. The results are quite inspiring. The purpose of the RARE Tribute to Champions of Hope Gala is...