Behind The Mystery of Scleroderma: A Rare & Sometimes Deadly Autoimmune Disorder
February 20, 2023
The mission of the Scleroderma Research Foundation is to find, fund, and facilitate the most promising, highest-quality research to improve therapies and ultimately find a cure for the disease.
Scleroderma is a rare autoimmune disorder involving many systems in the body. It causes inflammation that leads to the hardening and tightening of the skin and connective tissues. In the most serious cases, there can be damage to the heart, lungs, and digestive system — sometimes with lethal consequences.
In 1987, scleroderma patient Sharon Monsky founded the Scleroderma Research Foundation (SRF) with the purpose of finding a cure. Although she passed away from disease complications in 2002, her mission lives on today. We spoke with founding SRF Board Member Susan Feniger about her friendship with Sharon and how the SRF continues to drive research forward.
We also sat down with Melissa, a scleroderma patient who shared how her diagnosis has impacted her life, and Dr. Lorinda Chung of the Stanford University School of Medicine to understand the many forms of the disease.
Thanks in large part to the SRF and its generous donors, research is progressing faster than ever before, bringing us closer to a cure.
PROMOTED
School picture day is one of the most time-honored traditions in American life. In Texas, one company has taken this tradition to a whole new level. Meet the team at Photo Texas Photography.
PROMOTED
Capturing life’s special moments, increasing overall health and wellness, finding a purpose in helping others, and so much more! School picture day is one of the most time-honored traditions in American life. Photo Texas Photography has taken this tradition to a whole new level. For those suffering from addiction and associated disorders like PTSD and […]
PROMOTED
If you’re anything like us, the nutrition label on any food item is stressful to look at. The packaging can be quite deceiving on the front, depicting words like “natural” and “healthy”. So, instead of wondering what these labels mean, which can sometimes feel like you’re reading a foreign language, we decided to help you […]
Comments