Behind the Mystery: Diagnosing Endogenous Cushing Syndrome
July 20, 2016
Strongbridge Biopharma: Driven by Passion. Focused on Results.
On today’s special series “Behind the Mystery,” we’re talking about Cushing syndrome, a rare hormonal disorder that is too often misdiagnosed where patients are simply told to lose weight! An estimated 25,000 patients in the United States and 40,000 patients in Europe are currently diagnosed with endogenous Cushing syndrome. Endogenous Cushing syndrome is believed to be underdiagnosed due to lack of disease recognition by the treating physician, which often leads to a delay in diagnosis on average of six years. Host Olga Villaverde will talk with Dr. Maria Fleseriu and patient Leslie Edwin, to raise awareness about Cushing syndrome and discuss symptoms and ways to properly diagnosis it.
The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act.
Travis Flores is a 29-year-old cystic fibrosis survivor and a recipient of a very rare third double-lung transplant in May 2020.
The Balancing Act has partnered with the National Organization for Rare Disorders (NORD) and WEGO Health to shine a light on rare diseases and the impact they have on patients.