Behind the Mystery: Acromegaly
October 26, 2020
Understanding the signs and symptoms for early intervention.
In a patient with acromegaly, he or she has formed a tumor from hormone-producing cells, producing too much growth hormones and driving the liver to produce IGF1 — and together, growth hormone and IGF1 cause metabolic changes in the patients as well as enlargement of the hands, the feet, the skeletal system, cartilage, and all of the body organs.
If diagnosed and managed early, the long-term comorbidities and possible increased risk for premature death can be reduced; however, the symptoms and signs often escape detection because of the nature of the illness. We’ll hear from one patient who suffered for 12 years before being diagnosed and started Acromegaly Community to support other patients, as well as Dr. Blevins from UCSF who specializes in acromegaly.
The National Organization for Rare Disorders (NORD®) is celebrating Rare Disease Day 2021 with The Balancing Act.
Travis Flores is a 29-year-old cystic fibrosis survivor and a recipient of a very rare third double-lung transplant in May 2020.
The Balancing Act has partnered with the National Organization for Rare Disorders (NORD) and WEGO Health to shine a light on rare diseases and the impact they have on patients.