Duchenne muscular dystrophy is the most common fatal genetic condition diagnosed in childhood. The condition primary affects boys, and about 1 in 3,500 boys are born with Duchenne each year. The condition has a similar incidence to a more well-known condition, Cystic Fibrosis. Unlike Cystic Fibrosis, carrier screening for Duchenne has not been as widely […]
Cystic Fibrosis affects people from all walks of life and all age groups. One American company has dedicated itself to meeting the demands of Cystic Fibrosis patients bringing a whole level of care to this debilitating disease. Tune-in as The Balancing Act host Julie Moran sits down with Foundation Care co-founders, Dan Blakeley and Mike […]
Learn about a special pharmacy that cares for cystic fibrosis patients, safe use of antibiotics in farm animals, and affordable high-tech technology without trade-offs.
Cystic Fibrosis (CF) and Exocrine Pancreatic Insufficiency (EPI) are inherited chronic diseases affecting the lungs and digestive systems of nearly 30,000 children, and young adults here in the U.S. Among other symptoms, CF clogs the lungs and leads to life-threatening lung infections. Join Registered Dietitian, Raquel Durban from Identify EPI, who will educate about CF […]
Behind the Mystery: Rare and Genetic Diseases – Dr. Christopher Landon, MD Internal Medicine and advocate of Hill-Rom, a leading provider of medical technologies discusses solutions for living with Cystic Fibrosis and Neuromuscular Disease.