Airing weekdays at 7:30 A.M. on

Airing weekdays at 7:30 A.M. on

We’ve all heard of osteoporosis – a common disease as we get older that results in bones that are not dense enough.  But have you ever heard of severe malignant osteopetrosis?  Unless you’re one of only 200 families in the entire country dealing with this devastating diagnosis… you probably haven’t.  But severe malignant osteopetrosis is a very rare bone disease. It afflicts babies and young children, its symptoms are devastating, and the financial burden of treatment options weighs heavily on the families it affects.  Thanks to physicians like Dr. Paul Orchard, one of the experts in the U.S. in the use of bone marrow stem cell transplants needed by malignant osteopetrosis patients, life expectancy for these young patients is remarkably improved.  And thanks to patient advocates like Paul and Barbara Wersten, who fought for the life of their baby Ryan, support organizations like the Ryan Wersten MIOP Foundation are available to patient families.  Currently there is also an FDA-approved treatment called ACTIMMUNE® (Interferon Gamma-1b), marketed by Horizon Pharma Inc., helps delay time to disease progression for patients with SMO. Because of these efforts, and ongoing research families dealing with SMO have more hope today.

Website: http://www.curemiop.org

Health Special - Ways to Manage Cancer

Ways to Manage Cancer- a special health edition of The Balancing Act. For those who suffer from cancer- chemotherapy can be debilitating, however it is necessary for the effective treatment of the disease. There are now way to receive at home cancer infusion. It allows the patient to still receive gold standard of care in […]

At-Home Infusion Made Easy

InfuSystem is a growing healthcare company that provides infusion pumps and related products and services for patients in the home, oncology clinics, ambulatory surgery centers, and other sites of care from five locations serving all 50 States and Canada. According to their Director of Clinical Resources, Carrie Lachance they deliver improved patient experiences and high […]

Behind the Scenes with the Estefans for Their Hit Musical

Get reedy for another in our Broadway Balances America series. Watch as we go behind the scenes with Emilio and Gloria Estefan’s and discuss the musical On Your Feet!, which is based on their incredible lives. We sit down with the music icons and learn why they truly personify the American Dream. Also, are you […]

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