The Hollywood Spotlight Shines On Rare Disease Awareness
February 29, 2016
Today, you may think you’re not affected by rare disease – but based on the realities of human genetics, you, your child or your loved one could wake up tomorrow with a different reality. Gradual or sudden onset of mysterious symptoms. Doctor after doctor. Second, third and fourth opinions. Sleepless nights. A critical race against time searching for answers. A literal fighting for a loved one’s life. This is the fight grips the hearts of families, researchers, medical experts, treatment developers… and the creators of The Balancing Act. The award-winning medical series Behind The Mystery is The Balancing Act’s tribute to the fight for rare disease advocacy, awareness, treatment, patient support, even disease cures. Join us as we pay tribute to Rare Disease Day and the global awareness of rare diseases. Grab a backstage pass to the 4th Annual The Global Genes Summit & Gala, held in beautiful Huntington Beach California. Star gaze as Hollywood’s A-List comes out to pay tribute to the cause.
The Balancing Act Goes Behind the Scenes with the creative team of “Love Never Dies.” It’s the sequel to Andrew Lloyd Webber’s masterpiece, “The Phantom of The Opera.” Set 10 years later, the Phantom has escaped from Paris to New York’s Coney Island. He has finally found a place for his music to soar, all […]
Every 4 minutes someone dies of a stroke. Anyone can have a stroke. Everyone should be ready. But did you know 80% of strokes are preventable? The letters in “FAST” can be used to spot stroke signs and also let you know when it’s time to call 9-1-1. “F”-Face Drooping: does one side of your […]
Primary Periodic Paralysis (PPP) is a rare condition that causes attacks that affect your muscles, resulting in extreme muscle weakness or temporary paralysis, most often with an inability to stand independently, or even sit up. Primary periodic paralysis is not just one condition, but a group of inherited neuromuscular disorders. Although this condition is very […]